growing hope together
Frederick’s Growth Fund supports access to the first-ever pharmaceutical treatment for achondroplasia in South Africa — because every child deserves the best chance to grow.
Treatment is most effective during childhood, when the body is still growing, making this a critical window of opportunity. For many families, cost remains the only barrier standing in the way. Founded by a mother determined to turn hope into action, the organisation is working to expand access to treatment, support families navigating the medical journey of achondroplasia, and advocate for greater awareness and equity in genetic medicine across Africa. Our work focuses on:
Raising funds to help secure access to life changing treatment for children with achondroplasia
Supporting families as they navigate complex medical decisions and care pathways
Advocating for improved awareness and access to modern therapies in South Africa and across the continent
Building a compassionate community of parents, supporters, and professionals committed to better outcomes for affected children
At its heart, Frederick’s Growth Fund is built on a simple belief: a child’s future should not depend on where they are born.
The National Achondroplasia Registry helps us better understand the true prevalence and needs of individuals living with achondroplasia in South Africa. This information plays a vital role in advocating for improved access to treatment, support services, and resources. The National Achondroplasia Registry is hosted on RDSA Connect, an initiative of Rare Diseases South Africa. All information is kept strictly confidential and used only for advocacy and planning purposes. Registration takes less than two minutes, and helps drive meaningful change.
